WELCOME TO THE WSBHD24!
During the World Spina Bifida and Hydrocephalus Day several activities are organised to take place during October as awareness month. From October 1 to October 30 IF together with IF Members give special attention to regional events with all a different focus to the WSBHD24 theme of this year 'Bridging Gaps Together'. You are invited to take part in the different activities. More details can be found below.
World Spina Bifida and Hydrocephalus Day 2024 - Conference webinar 'Bridging Gaps Together'
On October 25 the main WSBHD24 Conference takes place. In an online webinar you will learn more about bridging different gaps in communities around the world.
Click on the link below to Register!
The 30th International Conference on Spina Bifida and Hydrocephalus
During this year's World Spina Bifida and Hydrocephalus Day on October 25, we will bring further awareness as to how we, together with you, can bridge the gaps for our global SBH community. This day is part of our 30th International Conference on Spina Bifida and Hydrocephalus: Bridging the Healthcare and Prevention Gaps - A Multidisciplinary Team Approach With the Community at Heart, organised from October 24-26 2024 in Kuala Lumpur, Malaysia
Conference Programme Book
The 30th International Conference on Spina Bifida and Hydrocephalus is a significant gathering of individuals, families, healthcare professionals, policymakers, and researchers from around the world.
Download our Conference Programme Book and discover more about our exciting events and speakers!
WSBHD24 Regional Activities by IF Members
Spina Bifida and Hydrocephalus Belgium - BELGIUM
On Sunday 20 October, Spina Bifida and Hydrocephalus Belgium is organising their annual autumn walk with their members. The walk will take place in the beautiful nature of Belgium and the day will conclude with a delicious meal altogether. This year they also commemorate the people that the association has lost the last 45 years.
Spina Bifida and Hydrocephalus Scotland - SCOTLAND
For World Spina Bifida and Hydrocephalus Day on 25 October, Spina Bifida and Hydrocephalus Scotland organises fund raising events and activities.
Spina Bifida Hydrocephalus - IRELAND
For Awareness Week this year, the Spina Bifida Hydrocephalus Ireland is hosting several events around the theme: #SeeMyAbility-NotMyDisability
The highlight of the week is an Art Exhibition comprising of works made by their members, as well as donations.
They are also hosting an online bingo, webinar on transitioning to third level education and a nationwide virtual ‘Walk and Roll’.
Spina Foundation - POLAND
On 28 September, Spina Foundation Poland organised an educational conference titled ‘Brain – a command centre: neurodiagnostics, neurotreatment, neurorehabilitation of people with Spina Bifida’.
Spina Bifida and Hydrocephalus Association - NIGERIA
On Saturday 26 October, the Spina Bifida and Hydrocephalus Association in Nigeria, is organising a Spina Bifida and Hydrocephalus awareness walk.
They also organise a media advocacy campaign on social media, on the radio and on TV, as well as an advocacy visit to hospitals on the need of multi-disciplinary health care for persons with Spina Bifida and hydrocephalus.
Asociación Paraguaya de Espina Bífida y patologías similares - PARAGUAY
For the World Spina Bifida and Hydrocephalus Day, the Asociación Paraguaya de Espina Bífida y patologías similares (APAEBHI) will host a meeting on Prevention in hospitals and will hand over awareness raising flyers.
RENAPRED - Mexico
On the World Spina Bifida and Hydrocephalus Day, RENAPRED in Mexico will have a discussion with the new municipal president of Puebla concerning Spina Bifida and Hydrocephalus. They will also carry out a social media campaigns promoting inclusive tourism.
Fundación Zero Limite Espina Bifida Panama - PANAMA
During the week of the World Spina Bifida and Hydrocephalus Day, the President of Fundación Zero Limite Espina Bifida Panama,, Lara Arosemena, is going on a press tour to talk to the media about Spina Bifida and Hydrocephalus.
Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus - SLOVAKIA
On 12 October, the Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus is organising a screening of a documentary film that tells the stories of young people with disabilities.
Asociación Para la Espina Bífida e Hidrocefalia - ARGENTINA
On 25 October, the Asociación Para la Espina Bífida e Hidrocefalia in Argentina will organise a gethering of parents, friends, staff, doctors and Board members, at its Day Centre. Together they will discuss about the situation of persons with disabilities in Argentina.
Support groups in Guayaquil and Quito cities - ECUADOR
During the World Day of Spina Bifida and Hydrocephalus Day, more than 60 families are working together to raise awareness about prevention.
Asociación Dominicana de Espina Bífida e Hidrocefalia, Inc. - DOMINICAN REPUBLIC
For the World Spina Bifida and Hydrocephalus Day, the Asociación Dominicana de Espina Bífida e Hidrocefalia, Inc. is opening a Prevention Campaign.
Families of persons with Spina Bifida and Hydrocephalus - BOLIVIA
In Cochabamba and Santa Cruz de la Sierra, in Bolivia, 50 families are working together with doctors to build a foundation of Spina Bifida and Hydrocephalus.
Hydrocephalus Association - CANADA
On 20 September, the Hydrocephalus Association of Canada organised awareness-raising activities promoting accessibility for early diagnosis and treatment for individuals with undiagnosed or untreated Hydrocephalus.
Komunitas Spina Bifida Indonesia - INDONESIA
On 27 October, Komunitas Spina Bifida Indonesia is organising a special webinar by inviting four expert speakers at once: Two neurosurgeons, a medical rehabilitation doctor and a professional physiotherapist. You can register here.
OMNI-Net - UKRAINE
On 23 October, OMNI-Net Ukraine, the Khmelnytskyi City Children's Hospital and the Khmelnytskyi Rare Disease Center (Khmelnytskyi, Ukraine) held a webinar for pediatric specialists with online and offline participation on multidisciplinary care of patients with Spina Bifida and Hydrocephalus (SBH).
This was an opportunity to share useful resources on the topic, in particular, recordings of a series of webinars on multidisciplinary care of SBH held jointly with IF, ERN eUROGEN and Light of Spirit (Ukraine).
Reach Another Foundation - ETHIOPIA
The Rotary Club of Addis Abeba West collaborated with the Alliance for Birth Defects and Reach Another Foundation to host a Parent Forum for families of children with spina bifida and hydrocephalus.
Coinciding with World Spina Bifida and Hydrocephalus Day, the event aimed to bring together 150 parents, including 50 children, to create a supportive community for sharing experiences and ideas while participating in recreational activities.
Is your activity not listed here? Let us know what you are planning for WSBHD24 by sending us an email at info@ifglobal.org